MCNR - Forum Archive

sixstars. Manager · 1,253 posts

2023-01-12 04:51 UTC

Hello, guys today I would like to share with you my personal experience with Scoliosis from the beginning to the day of surgery and post-operation.

Probably most of you will not care about that but maybe it could help some of you who have to face surgery and have a lot of questions and doubts.

Before starting I will explain what Scoliosis is for those who don't know;
Scoliosis is a spinal deformity that can appear in the age of skeletal development, from birth to 18 years of age. It presents as a lateral deviation of the spine with rotation on its axis, producing a single or double-curve deformity.
Is an idiopathic disease which means that have no scientific reason, maybe genetic, or a nerve deformity, or by trauma.

CHAPTER 1: It was a summer day.

It all started when I was 6 years old a little eat-spaghetti, It was Summer and I was playing in front of my mom and I was shirtless, my mom noticed that my spine wasn't 100% straight and after a Homemade checkup my parents decided to go to the hospital for being checked by a medic, the medic told us that most probably the Scoliosis was about to begin.
We decided to speak with a Orthopedic Specialist, this old man told us to do some X-Ray and MRI (Magnetic Risonance Image) unfortunately, X-Ray show us a very bad spine deformity for my young age, and I was too young to wear the medical Brace (a hell thing that helps you reduce scoliosis but dont let you move 100%) plus the scoliosis was too bad to be handled with Gymnastics or Swim, so we decided to wait until I was a lil bit older.

CHAPTER 2: My travel begins.

The years passed between school, friends, games, and the innocence of childhood.
And unfortunately the scoliosis got worse, so my parents took me back to the orthopedist (I was 10 years old).
After evaluating the x-rays, he told us that it was time to wear the orthopedic corset, he explained what it was and that I had to go to a special center to have it made to measure, wear it 20 hours a day and to avoid any strain on the spine.
I hated wearing that infernal thing, it deprived me of my freedom of movement, I remember crying every day because I couldn't play with my friends and I still didn't understand what I was facing while my parents was trying convince me.

CHAPTER 3: On the Road.

Time flies, year after year I always put on a new corset to the point of having a collection from the smallest to the largest in the garage, the visits follow one another but each x-ray does not show any improvement but a gradual worsening of the column curve, the only good thing is that the corset helps me grow in height. The doctor told me that from then on I had to wear it 24/7 if I was to hope for a miracle, again the loop starts again, new bust new conditions and less freedom to live my teenage life. Time passes and the doctor decides to opt for the most drastic way, surgery, I think about it for a while and after talking to those who have already had surgery, knowing the risks, complications and everything, I decide to have surgery.

CHAPTER 4: Hard problems needs drastic decisions.

The doctor referred us to an Italian center of excellence for the treatment of scoliosis and we booked ourselves in for a visit with the surgeon.
After evaluating my condition he told us that I absolutely had to be operated on because due to the curve a sort of ditch had been created on the right pelvis and this would have led to serious breathing problems, crushing of internal organs and that in practice I would have crushed myself.
He put me on the waiting list, waiting 1 year before the surgery, the year goes by we don't receive any calls and they didn't give us any information on when they would have operated on me, time passes and unfortunately the Covid-19 pandemic begins, they call us telling us that they would only operate on the most urgent cases and that I would have to wait longer.
2022 begins and I'm 20 years old, no one informs us about when I would have the operation, so I decide to go to another surgeon, this time in Milan, the doctor is Italian-Greek and is a luminary of spinal surgery thanks to his minimally invasive methods , after the visit he tells me that from there to June he would have operated on me, I went home this time hoping to have found the right doctor.

CHAPTER 5: Pain times.

It is May 20, 2022, I finally received the summons for the operation, they told me that I would have to go to Milan to the Humanitas San Pio X hospital on June 6 to do all the pre-operative checks and hospitalization the next day, with the surgery scheduled for the morning of June 8th. I took that damned train to Milan, sure of myself and without fear, I arrived there at the hospital, immediately welcomed like a child by all the staff, a huge structure, where I understood what suffering really was because I met people (children and adults) terminally ill whose life flows like sand inside an hourglass. 8 June, 7am I arrive in the operating room, they prepare me for surgery, they put on the drip, the electrodes, the nurses smile at me reassuring me that everything would go well and that soon I would start a new life, wherever I go around I see doctors, stretchers, unknown machines, operating tables and other medical stuff. They inject me the first dose of anesthesia directly on the prickly liquid through a painless puncture, I lie down on the bed and enter the room, honestly I didn't see much of what was inside, I only remember that there was a large machine for the light like those in American movies, a nurse was talking to me about my hobbies and passions while the anesthetist injected the anesthetic drug intravenously, the last memory I have is that the nurse I was talking to puts a mask on me and greets me with the hand while telling colleagues "he's falling asleep, his eyes are closing" (I swear I never realized I was about to fall asleep). I wake up at 19pm after 12 hours of sleep, and after 7 hours of surgery. I was full of wires around me, fully monitored, the first thing I did was wiggle my legs and toes to make sure I wasn't paralysed. I felt no pain apart from a severe headache, the anesthesia was still in effect. They bring me back to the room after 1 hour, during the transport they risked making me fall down the stairs because a nurse forgot to brake the wheels of the stretcher and I was slipping towards the staircase.... I spent the night between a strange sensation all over my back and an enormous heaviness on my shoulders and excruciating, indescribable pain, it was as if someone was tearing my vertebrae one by one. I used medical morphine and 3 different painkillers to dull the pain, which was still excruciating and breath taking. The next day the surgeon made me get up and take the first steps, they removed the catheter and I started taking the first steps with my new back. It was all new, I could no longer do the same movements I did before and I had to be careful to move with caution because the stitches could open. I walked very slowly, I felt old and sick but that was normal, I had just been opened like a pig. I was discharged after 4 days of hospitalization, I was so happy I could finally go home to start my new life and continue my healing process. I continued to suffer for 1 month from postoperative pains, my treatment was based on painkillers, needles and tachypirines. The improvements I saw from week to week, slowly I started to move better, I started to feel less pain and slowly the sense of heaviness was fading. To date it has been 7 months and I feel super satisfied with the surgery, I would do it again 100 times because now I no longer have any aesthetic deformities, I breathe better, I am taller (gained 6cm) and I no longer have any back pain when I arrive at the end of the day. It was tough but I did it, I won against scoliosis and if you want advice, please never give up, keep fighting until you win. End.

Here you go some pics of my scoliosis.
X-Ray Before surgery: <a href="https://ibb.co/pv2Q8xN"><img src="https://i.ibb.co/7JvQ5XB/IMG-20230112-053123.jpg" alt="IMG-20230112-053123" border="0"></a>
X-Ray After surgery: <a href="https://ibb.co/NVFrX2c"><img src="https://i.ibb.co/BzfGm20/Screenshot-2023-01-12-05-30-02-030-com-whatsapp.jpg" alt="Screenshot-2023-01-12-05-30-02-030-com-whatsapp" border="0"></a>

Photo before surgery: <a href="https://ibb.co/N20PFy0"><img src="https://i.ibb.co/pjH81LH/IMG-20230112-054142.jpg" alt="IMG-20230112-054142" border="0"></a>
Photo after surgery: <a href="https://ibb.co/b2CVLfx"><img src="https://i.ibb.co/P9Py4SR/Screenshot-2023-01-12-05-30-06-591-com-whatsapp.jpg" alt="Screenshot-2023-01-12-05-30-06-591-com-whatsapp" border="0"></a>

If you wanna see how this surgery works i'll link a YouTube video.
Warning all of you that the images you will see are explicit material and Blood, watch it at your own risk./color]
https://m.youtube.com/watch?v=o8HmaXqbTmY

Thanks you so much for Reading my story i appreciate that.

Universe aka Star.